ENT Burden Atlas

Research attention vs disease burden in otolaryngology, 1995–2024 — a preregistered dynamic census

What this is

The ENT Burden Atlas presents a preregistered census of how research attention in otolaryngology (ear, nose and throat medicine) has aligned with disease burden over 30 years. Publications were counted in Europe PMC for 14 disease areas (1995–2024; 392,456 retrievable records); for the seven areas with a matched Global Burden of Disease (GBD) 2023 cause, output is set against DALY burden (1995–2023). Four measurement layers are reported on one scale: publication-share dynamics, the attention–burden ratio (ABR), the geographic distance between burden and research centroids, and a rule-based decoupling typology. The design was registered before the record-level data were pulled (OSF registration, DOI 10.17605/OSF.IO/NUC4B).

26,544 → 128,117
Publications in the 14-area pool per five-year period, 1995–99 → 2020–24
32.1% → 44.6%
Combined pool share of the five head-and-neck cancers
log2 ABR −1.05 → −1.47
Hearing loss: 72.7% of pooled DALYs vs 26.3% of pooled publications (ABR 0.36 in 2020–24) — the deepest, still-widening deficit
7.9% → 39.8%
Low- and middle-income country share of first authors (all pooled areas); excluding China 5.4% → 17.9%

Headline findings

CRS/polyps. Terminology caveat: under a pre-frozen backup query built only from modern post-consensus terms, the CRS share change reverses (+251.0% instead of −26.6%). The apparent decline is read as terminology migration, not as a change in research volume, and is not carried as a headline conclusion.

How to cite and reuse

Preregistration: doi.org/10.17605/OSF.IO/NUC4B · Frozen data and code: Zenodo, DOI 10.5281/zenodo.24157110 · Production code: GitHub repository · Canonical site: burden.erbihou.org

A manuscript reporting this census is in preparation for Scientometrics (it has not been published). The frozen tables on the Downloads page can be reused under the archive licence; the pipeline is specialty-agnostic and can be re-run for another specialty's disease pool.

Scope boundary: every quantity here describes the configuration of published research relative to modelled burden estimates. Nothing on this site ranks diseases by clinical importance or states how much research any disease should receive.